What do Spinal Cerebellar Ataxia, the New York Marathon, and Candace House have in common?
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Me! (Carla Loeppky, Board Chair of the Candace House Board of Directors)
Some of you may know that I have a progressive neurological disorder called Spinal Cerebellar Ataxia (SCA) — a condition that primarily impacts my balance and vision. I have had it since birth but only started experiencing symptoms in my late twenties. Now, on the cusp of my 50th year, my day to day life looks a little different than it used to!
You might also know that I like running. Not for speed but definitely for mental and physical health. A few months ago, in a moment of recklessness, I applied to the lottery for a chance to run in the New York City Marathon. And, against some pretty crazy odds, was successful at securing a spot!!!
Because of the SCA, I will be running as an Athlete with a Disability and have access to a support runner (my son Henry!!!). This means that on November 6, 2022, Henry and I will be toodling through New York City, enjoying every minute of a highly painful experience. [We have a great support team as well — special kudos to Shelly and Brina for being the absolute best]
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